We were recently on vacation in Florida and my mom commented on how cute the girl in the pink hat was… that girl is our daughter Ella. And she is very cute, even without her pink hat.

Ella is in hats a lot to protect her many scars from the sun, and she shines underneath them all. She is a beautiful little girl and even in her “I’m almost 4 and I can do it myself attitude” we find so much to love. She is the light of our life (along with little brother Justice) and we have learned so much from her.  But it isn’t her Down syndrome that is teaching us, it is Ella herself and her personality. I don’t know if taking away her Down Syndrome would change who she is or not, but as her mom I would never be willing to find out even if I could. I love her everyday just as she is.

Before Ella I loved. I loved her dad, I loved my family, I loved living a life full of travel and adventure, I loved chocolate, I loved my life… but I didn’t know how deep the love of a child would be. And I never thought about if I could ever love someone with Down syndrome – it simply never crossed my mind.  And then Ella was born and my heart was hers in an instant. The first year was a struggle of emotions and grief over the loss of what we thought our plans for her future would be, but we prevailed in love. The next several years were filled with struggles from surgeries and medical procedures but we prevailed in love. And now as all our known struggles are behind us and we watch in awe as Ella discovers a whole new world in school, we continue to prevail in love. Our hearts are overflowing!

But what I know, and what I want everyone to learn is that Ella is Ella. She is not a girl with Down syndrome who happens to be our daughter, or a teacher’s student, or a child’s friend.  I pray that Ella will be accepted into our world for just the person God has made her to be; that she will find her place in life and be happy and fulfilled. It’s the same prayer I imagine all parents have for all children. When I look into her future I am afraid for all of the unknowns that lay ahead but in truth, most days I forget that she has Down syndrome as it is so easy just to enjoy who she is.  She laughs and giggles and cries. She dances and runs and walks. She smiles and pouts and cheers. She is simply Ella, our amazing little girl.

Ahead I know there are more struggles waiting to find us and her, but today everything is perfect and just as it should be.  God has given us the gift of love in both our children and that will always be more than enough for us.

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Two more hours before the Drs take her to surgery.

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Santa, can we be friends?

We have had a wonderful and relaxing day!

Our first Christmas at home in MI.

While Kirk and I didn’t feel the real holiday spirit right away (without our family around, with all the daily grind,  doctors appointments and surgeries) we have had a very happy day! Ella enjoyed opening all her presents (I think there are 3 left she must be saving for tomorrow). She’s really got this unwrapping thing figured out, and is all smiles with each new gift!

We ended our family day with a very yummy meal completely prepared by a thoughtful husband (all mine!). I happily cleaned up singing along to Christmas songs and smiling the whole time. Soon we’re (Kirk is) off to give Ella a bath and maybe early bed as she skipped a nap today, and then Kirk and I can relax in front of the fire… sigh.

Last night we had a visit from Santa and his elf (Miss Barb, our friend/teacher/babysitter has a personal connection). Ella was unsure so Santa kept his distance and kept inching closer until they were almost touching – very cute! You can check out all the pictures at

http://ellagoodwin.com/main.php/v/2008+Photos/A+Visit+from+Santa/

(Remember to click on the picture to see bigger images.)

So from a very happy house we send Christmas blessings to all our friends and family – we hope your day was as beautiful as ours!

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