We needed to change Ella’s bandages which was coupled with a lot of crying and screaming.  So much so that we had to put the arm restraints and “lock her in” behind the tray on her chair.

Of course this didn’t make her happy but it did allow us to get the bandages and headware on Ella.  After we were done I put a similar hat on her dolly which seemed to make her very happy.  I also topped the hat with one of the plastic tubes we use with Ella which seemed to make her extra happy.

The really good news is that Ella’s tube only has pretty clear “drips” in it which means hopefully our friend from our church can come over and help take the drainage tube out this weekend  After that we won’t have to put on anymore headware or bandages!

Bonnie says Ella had a very good day otherwise!

We’ll keep you updated!

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We thank God everyday for those who have helped to lift our spirits.

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Kirk and I are very thankful for our friend from church Karen, a nurse here in St Joe. She met us in Chicago with her husband and two sons in tow (they went to the zoo) to learn the injection procedure with us so that we’ll have a backup here in town. We have had so many blessings along the way and Karen has been added to that list!

Once again Ella was a trooper – she did cry, pretty hard, but I am attributing that more to the lack of a nap before the appointment than to any real discomfort. She was really mad about the numbing cream rubbed on the injection ports; maybe it was cold? But once the gel was in place she played happily for about 30 minutes while we waited for it to kick in and while the nurse was reviewing the procedures with us. And she did not cry during the actual injections so we know that she should do fine when we are on our own. Kirk was amazing to – he is an incredibly loving father and while it hurts his heart to push a needle into Ella’s head, he is strong and steady; instilling confidence and faith in both his girls!

When we came home I walked into our kitchen and smiled at the beautiful vase of flowers brought to me earlier by my friend Miss Barb (Ella’s part-time therapist, friend, and now babysitter – if she’ll come back after Ella’s afternoon of tears this week!) It lifted my spirits, and I needed that!

Ella did finally get a good nap on the way home and she ate a big dinner – bigger than she has all week! Maybe the medications upset her tummy? Or maybe it was just all her struggling to avoid taking them that messed with her appetite. But luckily now that the drainage tubes are out she no longer has to take them, and Kirk and I (mostly Kirk) no longer have to wake her at 1am to force them into her.

After dinner we took a short family walk and Ella laughed and smelled all the flowering bushes in our yard! She giggles when we laugh at her efforts to snort air in and out her nose! We shared some ice cream, and gave Ella a bath… at long last we have washed her hair! That made mom feel better too.

So now Ella is sleeping peacefully, and Kirk and I are relaxing together, happy knowing that all is well with our beautiful girl!

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Unfortunately in less than a year, two couples to whom we grew close have or are departing from St. Joseph.

First, the Marchenko’s moved to pastor the Christian Fellowship E-Free Church in Chicago.² While we can keep updated on Sergei through his blog, it’s just not the same. Bonnie sure misses Gillian, and Ella certainly misses their girls. They are real rocks upon which we can lean especially as their daughter Polly, a mere four days older than Ella, also had Down syndrome. Sergei is a calming force in my hectic life and has been a great sounding board who I miss as well.

Second, Chris and Sarah, other members of our Sunday School or “ABF”, are also moving this Friday to the east coast. They are two very fun people who we’ll miss their joy in life and in the Lord and are certain will continue to share that with those who are fortunate to meet them upon their arrival at their new town.

Fellowship with friends are certainly important and we cherish the friends we had an Newton, IA³ but are thankful for those God brought into our lives here in Saint Joseph.

We have been blessed in so many ways and we are reminded of that every morning when Ella hollers “Dad!”

1. Now, I’m not saying the neighbors aren’t people but just pointing out specifically that we’re fortunate to have many very welcoming neighbors
2. Located at 3425 Damen Ave in Chicago. Call (773) 348-3450 for more information. Ask for Sergei, who gives great sermons.
3. Not to forget those Bonnie had in Denver and I had in Atlanta before we both returned to Iowa

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