The Goodwins

………. Sharing life with Kirk, Bonnie, Ella and Justice ……….

Archive for the category: ‘Down syndrome’


Finally, An Accomplice in the House

Written by: Bonnie

2013 Shoes

The Shoe Bandits are on the Loose

Our cute Ella has been secretly sneaking off with our shoes to various unknown parts of the house for a few years now, and finally she has an accomplice… Justice too has found the joy in pretending to be daddy and clomping around in a big pair of shoes.

It has been amazing to see our two kiddos grow into their own personalities and to watch their friendship grow – they truly are best friends. I am amazed by the progress that they make everyday and I can’t believe they are growing as fast as they are.

I am excited to watch as their adventures continue in this world, but for now be warned that the Shoe Bandits are officially on the loose!

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Pete the Purple Pumpkin

Written by: Bonnie

This story was written by a 12 year old girl in honor of her brother Toby, who has Down syndrome. It touched me as a wonderful expression of wisdom & love, that I pray we can all live by. I am posting it here with permission from Gillian Marchenko’s blog Pocket Lint , & her friend Suzanne McDonald.

Pete the Purple Pumpkin
By EmmaLee McDonald

(Dedicated to EmmaLee’s little pumpkin Toby, who happens to have Down syndrome)

There once was this purple pumpkin named Pete. Unlike any other pumpkin, Pete was purple. Every fall he hoped he would get picked. But every fall he didn’t get picked, he wondered why. He thought, “Sure I might be purple, but you can still carve me and eat my seeds.” The only thing different was his outside. People would look at him and then laugh. Every pumpkin thought that Pete was the kindest, sweetest pumpkin ever! They also wondered why Pete wasn’t getting picked. Now, Pete was getting older and the farmers said that if Pete didn’t get picked this fall, he would have to be thrown away. Pete didn’t want this to happen, so he hoped this fall would be different. Two days went passed and people only looked at him and laughed. Then, the next day, a little girl with a pink tutu and a tiara looked at Pete and said “I want this one.” Pete was so overjoyed. This girl loved Pete the most. Once this girl carved him, she placed him on her porch. That evening, she saw all of the neighbors on her lawn. Hoping they weren’t making fun of Pete, she ran out. Then, she realized what they were all staring at. It was a light brighter than any she had ever seen, shining from within Pete, without even one candle. It was a light that shown from within. Then, people came from far and wide to see this bright, little pumpkin. Just imagine what the world would have missed if Pete were simply thrown away. Even though people may look different on the outside, true beauty comes from within.

Big thanks to EmmaLee for sharing her story

(EmmaLee is twelve years old. Amazing, huh?)

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God’s Gift

Written by: Bonnie

Sharing this from a blog post by a good friend….. I think that she got it just right!

While on the beach talking to Rich, my husband, he mentioned a great idea for a blog. It sounded insightful and challenging and much better than the VBS rabbit trail I was making, so with the help of my better half this is what he observed.

Last week, on one of Rich’s many journeys to the beach, he observed a dad playing with his about 12 yr. old son. This son had Downs Syndrome. The two were laughing and having a wonderful time together. His first thought was, “what a struggle for that family.” After scanning the beach he also noticed other dads with their sons. Many of those dads were deeply focused reading their book or magazine or in their own thoughts, vaguely aware of what their child was doing. They were self-focused and didn’t look so happy.

In contrast, one dad was given an unexpected gift, Downs syndrome, and the rest of the dads were given an expected gift, a child without handicaps. But why was there such a huge difference in the two situations? If you take the gifts God has given all of us and make the most of what you can with that gift, you will have times of laughter and true happiness.

To look how this could be applied in another way, listen to this true life example: There was an older gentleman who visits his wife in a nursing home every day. Not so strange you may say ,except for the fact that she has Alzheimer’s and no longer knows his name or who he is. He considers himself very blessed compared to other men because many have had to bury their wives and he still has her here on earth.

Here’s our challenge: make the most of the gifts God has given us, expected gifts or not expected gifts. Seize each day with anticipation and make the most with the gifts he’s given us.

Jan Brandt

Posted by Jan Brandt on Jul 20, 2010 at 8:24 AM

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Loving the Girl in the Pink Hat

Written by: Bonnie

Ella

We were recently on vacation in Florida and my mom commented on how cute the girl in the pink hat was… that girl is our daughter Ella. And she is very cute, even without her pink hat.

Ella is in hats a lot to protect her many scars from the sun, and she shines underneath them all. She is a beautiful little girl and even in her “I’m almost 4 and I can do it myself attitude” we find so much to love. She is the light of our life (along with little brother Justice) and we have learned so much from her. Ella & Justice But it isn’t her Down syndrome that is teaching us, it is Ella herself and her personality. I don’t know if taking away her Down Syndrome would change who she is or not, but as her mom I would never be willing to find out even if I could. I love her everyday just as she is.

Before Ella I loved. I loved her dad, I loved my family, I loved living a life full of travel and adventure, I loved chocolate, I loved my life… but I didn’t know how deep the love of a child would be. And I never thought about if I could ever love someone with Down syndrome – it simply never crossed my mind. Ella And then Ella was born and my heart was hers in an instant. The first year was a struggle of emotions and grief over the loss of what we thought our plans for her future would be, but we prevailed in love. The next several years were filled with struggles from surgeries and medical procedures but we prevailed in love. And now as all our known struggles are behind us and we watch in awe as Ella discovers a whole new world in school, we continue to prevail in love. Our hearts are overflowing!

But what I know, and what I want everyone to learn is that Ella is Ella. She is not a girl with Down syndrome who happens to be our daughter, or a teacher’s student, or a child’s friend. Ella I pray that Ella will be accepted into our world for just the person God has made her to be; that she will find her place in life and be happy and fulfilled. It’s the same prayer I imagine all parents have for all children. When I look into her future I am afraid for all of the unknowns that lay ahead but in truth, most days I forget that she has Down syndrome as it is so easy just to enjoy who she is.  She laughs and giggles and cries. She dances and runs and walks. She smiles and pouts and cheers. She is simply Ella, our amazing little girl.

Ahead I know there are more struggles waiting to find us and her, but today everything is perfect and just as it should be. Ella & Justice God has given us the gift of love in both our children and that will always be more than enough for us.

 

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Update on Polly

Written by: Kirk

Today Polly will be under anesthesia for her angiograph to aid the surgeons in understanding where the surgery in her brain should occur.  The date of the first surgery will be set after this, but is likely to be in a couple of weeks.

Please keep her and her parents in your prayers so she will be stroke and seizure free and bounce back from these procedures and surgeries and that her parents will feel the presence of the Lord during these tough times.

You can keep up with the Marchenko’s here.  http://lintofpocket.wordpress.com/

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