The Goodwins

Today Polly will be under anesthesia for her angiograph to aid the surgeons in understanding where the surgery in her brain should occur.  The date of the first surgery will be set after this, but is likely to be in a couple of weeks.

Please keep her and her parents in your prayers so she will be stroke and seizure free and bounce back from these procedures and surgeries and that her parents will feel the presence of the Lord during these tough times.

You can keep up with the Marchenko’s here.  http://lintofpocket.wordpress.com/

I wanted to updated everyone on Polly, the Marchenko’s 3 year old daughter with Down syndrome. Last Sunday Polly appeared to have multiple seizures. As she’d never had seizures, she was taken to Children’s Memorial in Chicago, not too far from the church where Sergei Marchenko pastors.  He and his family are our sponsored missionaries for Bonnie and my church adult bible fellowship (’ABF’) group.

The doctors at Children’s Memorial determined that she has Moyamoya syndrome.

In Moyamoya syndrome blood vessels in the brain are abnormally constricted which may lead to clots (thrombosis). To compensate the brain will often develop “collateral circulation” vessels.  Unfortunately these vessels are typically weaker and prone to hemorrhage, aneurysm and thrombosis. Persons with Down syndrome, neurofibromatosis, or sickle cell disease have a higher rate than moyamoya malformations but some studies indicate that it may be also inherited.

Children with Moyamoya may experience strokes and/or seizures. Often these are transient ischemic attacks (TIA) or “mini-strokes” and are often accompanied by muscular weakness or paralysis affecting one side of the body, or seizures.

It appears that our beautiful little Polly experienced at least one TIA and there is some decreased motility of her right leg.  Fortunately the doctors are expecting a full recovery of that leg.

Moyamoya is often treated with medication as well as surgery. While surgery does have risk of additional strokes, in the vast majority of cases the patients are stroke free for a good period of time. Of course there are multiple types of surgery and medications available to manage and treat the symptoms of Moyamoya syndrome.

In regard to Polly, I just learned that Polly will be undergoing surgery in Mid-November.

Please keep Polly and her family in your prayers.

Our dear friends are in the process of adopting a beautiful little girl from eastern Europe. Her name is to be Evangeline. She is a child with Down syndrome, just as their youngest Polly.

As a parent of a child with Down syndrome we are blessed to have them as friends and are supporting them in their adoption quest both in prayer and financially.

Before Sergei began pastoring at the Christian Fellowship Free Church in Chicago, he and his family attended The Chapel in Saint Joseph, MI. Their former church family had a baby shower and this video was created for that shower.

For more information on their adoption process please go to http://expectingevangeline.blogspot.com/

If you ware interested in providing financial support please go to http://www.reecesrainbow.org/sponsormarchenko.htm

You may notice the new “logo” in the top right corner of our blog. It will be there for a while, but hopefully not TOO long. Let me tell you about it.

One of the first couples we met when moving to Saint Joseph, MI we met while we were in Iowa and they were in the Ukraine.

Four days before Ella was born, Sergei & Gillian Marchenko delivered their youngest daughter Polly in a hospital in the Ukraine. We both learned at their births that our daughters have Down syndrome. We “met” online through the Michiana Down Syndrome Support group. Having another family who had a new daughter with Down syndrome was such a great blessing to Bonnie and I when we moved, and we are so thankful for their support and friendship, and we discovered after moving that we were attending the same church!

Well, our amazing friends, who are now in Chicago where Sergi pastors a church in the Wrigleyville area, are adopting another little girl with Down syndrome from Eastern Europe. Their newest little angel will be named, upon adoption, Evangeline¹.

Evangeline turned two in October. She is living in an orphanage and we hear she has grown to be a healthy, sweet, social little girl. Her adoptive paternal grandmother recently visited little Evangeline and I hear is enamored with her.

Children with DS in her country typically transition from the orphanage to an institution when they are four years old. Devastatingly, a staggering number of children who are institutionalized in her country do not make it to adulthood².

Sergei and Gillian share that as soon as they saw Evangeline’s sweet face they knew she was meant to be their daughter. Their older daughters Elaina and Zoya are very excited about having another sister to love – even volunteering to do without Christmas presents to help bring Evangeline home to them!

International adoption is a huge financial obligation and the Marchenko’s have recently started a “fund raiser” asking those who can to donate $10 (or more) to Evangeline for Christmas.

I know money is tight and you all don’t know Sergei and Gillian personally, but this small gift will be the world to our friends, their family and little Evangeline. If you would like to help bring Evangeline home to her new family you can donate online here through Reece’s Rainbow. Reece’s Rainbow has received their 501(3)c tax deductible status, so these contributions are deductible³. See their website for more information. Alternatively, you can send a check⁴ to them at:

The Marchenko Family
c/o Reece’s Rainbow
PO Box 2055
Dacula, GA 30019

Whether you can or not donate, please keep this family and future newest member in your prayers! Follow their adoption process at Expecting Evangeline.

God Bless,
Kirk and Bonnie

1. Evangeline is Greek for “Angel” [↩]
2. Yes, I am intentionally being vague on the country to avoid potentially upsetting the country who’s controlling this adoption process [↩]
3. They qualify as a public charity under IRS code 170(b)(a)(A)(vi) [↩]
4. and save the Paypal fees [↩]

Kirk, Ella and I are getting ready to participate in our 2nd Buddy Walk on September 20th (supporting Down syndrome awareness) and we are hoping that many of you will be able to help us meet our fund raising goal of $3000.

The walk helps to raise funds for the Michiana Down Syndrome Family Support and Advocacy Group. This group welcomed our family when we moved to MI and their goal is to improve the lives of individuals with Down syndrome. They provide education, awareness, medical need assistance, and family support to families throughout Michiana and the surrounding areas.

Please take time to check out Ella’s donation website where you can donate with your credit cards, or Kirk and I are happy to accept cash and checks (made out to Michiana Buddy Walk).

We know that there a lot of charities out there asking for your money so please know that if all you can send us are your prayers that we thank you for those as well!

http://www.firstgiving.com/ellagoodwin

And of course, if you’d like to join us for the walk please do!

Here’s the schedule:

Event Schedule
We will walk rain or shine.
10:00 – 11:30 – Register and turn in your donations.
(T-shirt for each walker that raises $50- while supplies last)
10:00 – 11:30 Silent Auction Open
10:00 – 1:30 Vendor Tables Open
10:00 – 1:30 Fun & Activities with ND Athletes
12:00 Walk / Followed by Lunch
Entertainment
10:00 – 10:30 Dads Band
10:30 – 11:30 Leonardo
11:30 Speech / Slide Show
12:30 – 1:30 Leonardo

And here’s the directions to the Stepan Center (on Stepan Drive) on the Notre Dame Campus

Directions:

Go west on Douglas Road ½ block past roundabout turn South on Wilson Drive then west on Stepan Drive.  You can also find it through Google Maps. Or for those with a GPS the coordinates are 41.706270, -86.234349. A map can be found below.

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