Ella is with daddy
Written by: Bonnie
Kirk is with Ella in recovery and all is well! Justice and I will see her soon… Thank you for all the love and prayers.
Tags: Ella, Expander, Nevus, Prayer Request, SurgeryKirk is with Ella in recovery and all is well! Justice and I will see her soon… Thank you for all the love and prayers.
Tags: Ella, Expander, Nevus, Prayer Request, SurgeryMerry Christmas to all…
Santa, can we be friends?
We have had a wonderful and relaxing day!
Our first Christmas at home in MI.
While Kirk and I didn’t feel the real holiday spirit right away (without our family around, with all the daily grind, doctors appointments and surgeries) we have had a very happy day! Ella enjoyed opening all her presents (I think there are 3 left she must be saving for tomorrow). She’s really got this unwrapping thing figured out, and is all smiles with each new gift!
We ended our family day with a very yummy meal completely prepared by a thoughtful husband (all mine!). I happily cleaned up singing along to Christmas songs and smiling the whole time. Soon we’re (Kirk is) off to give Ella a bath and maybe early bed as she skipped a nap today, and then Kirk and I can relax in front of the fire… sigh.
Last night we had a visit from Santa and his elf (Miss Barb, our friend/teacher/babysitter has a personal connection). Ella was unsure so Santa kept his distance and kept inching closer until they were almost touching – very cute! You can check out all the pictures at
http://ellagoodwin.com/main.php/v/2008+Photos/A+Visit+from+Santa/
(Remember to click on the picture to see bigger images.)
So from a very happy house we send Christmas blessings to all our friends and family – we hope your day was as beautiful as ours!
Tags: Christmas, Ella, Friends, Santa, The GoodwinsIt’s hard to believe that Ella will be a big sister soon! She’ll be three in April (can you believe it?).
Kirk and I are amazed everyday at the extraordinary addition she has been to our family, and we can’t wait to see what joy her new little brother will bring to us all!
I doubt Ella truly knows how her life is about to change… right now she’s all about hugging, kissing and raspberrying the baby in Mama’s tummy. She loves to listen to the “thumpa thumpa” (she taps her chest) on the heart monitor we rented, and she laughs whenever we ask her about her little brother. I wonder how she’ll do with crying, sharing, and stinky diapers that aren’t her own…?
So for all of you who love our family and are watching us grow, here is an image of Ella’s little brother from our recent 3D ultrasound. If you click on the image of our newest Goodwin it will get you a little bigger picture of the cute face that is about to join the world!
Sending love, smiles and blessings to all of you!
P.S. for those who haven’t yet heard or seen it for themselves, Ella is officially a walker – she’s all about doing it herself (no more need for mom and dad’s fingers!), and she is picking up the pace every day! I’m hoping to get some movies of her soon!
Tags: Baby Boy, Brother, EllaKirk, Ella and I are getting ready to participate in our 2nd Buddy Walk on September 20th (supporting Down syndrome awareness) and we are hoping that many of you will be able to help us meet our fund raising goal of $3000.
The walk helps to raise funds for the Michiana Down Syndrome Family Support and Advocacy Group. This group welcomed our family when we moved to MI and their goal is to improve the lives of individuals with Down syndrome. They provide education, awareness, medical need assistance, and family support to families throughout Michiana and the surrounding areas.
Please take time to check out Ella’s donation website where you can donate with your credit cards, or Kirk and I are happy to accept cash and checks (made out to Michiana Buddy Walk).
We know that there a lot of charities out there asking for your money so please know that if all you can send us are your prayers that we thank you for those as well!
http://www.firstgiving.com/ellagoodwin
And of course, if you’d like to join us for the walk please do!
Here’s the schedule:
Event Schedule
We will walk rain or shine.
10:00 – 11:30 – Register and turn in your donations.
(T-shirt for each walker that raises $50- while supplies last)
10:00 – 11:30 Silent Auction Open
10:00 – 1:30 Vendor Tables Open
10:00 – 1:30 Fun & Activities with ND Athletes
12:00 Walk / Followed by Lunch
Entertainment
10:00 – 10:30 Dads Band
10:30 – 11:30 Leonardo
11:30 Speech / Slide Show
12:30 – 1:30 Leonardo
And here’s the directions to the Stepan Center (on Stepan Drive) on the Notre Dame Campus
Directions:
Go west on Douglas Road ½ block past roundabout turn South on Wilson Drive then west on Stepan Drive. You can also find it through Google Maps. Or for those with a GPS the coordinates are 41.706270, -86.234349. A map can be found below.
Tags: Buddywalk, Down syndrome, EllaJust a quick update on Ella … our lives keep passing by and I can’t seem to get on the computer, so please forgive me for not getting this together sooner.
Ella had her eye surgery on August 14th and everything went very well – the doctor saw her the day after and was pleased with how straight her eyes looked. And, while sleeping in arm restraints and having drops & greasy gel put into her eyes made her extremely unhappy at first, she has been a trooper as usual and by the end was even allowing dad to put the medicine in without mom having to sit on her! We have finished all her meds and only have a couple days left of the arm restraints and we’ll be all done.
The procedure was called a bi-lateral medial rectus recession. It involved making an incision on the white part of her eyes – on the sides so there should be no visible scaring. From that point the doctor detached the muscles (nearest her nose) and re-attached them further back on the eye. They used dissolving sutures and she did not have any bandages or patches over her eyes when they were finished.
We have a follow up appointment at the end of September to check the true outcome of the surgery. In the meantime, she’ll continue to wear her current glasses prescription with the potential of outgrowing her far-sightedness (kids often do). However, there is a good chance that as she grows she will move into being near-sighted like dad, so she’ll probably continue needing glasses regardless, but we’ll see.
Thank you to everyone for all the supoprt you always provide to us!
Tags: Crossed Eyes, Ella, SurgeryBad Behavior has blocked 1074 access attempts in the last 7 days.