The Goodwins

Kirk, Ella and I are getting ready to participate in our 2nd Buddy Walk on September 20th (supporting Down syndrome awareness) and we are hoping that many of you will be able to help us meet our fund raising goal of $3000.

The walk helps to raise funds for the Michiana Down Syndrome Family Support and Advocacy Group. This group welcomed our family when we moved to MI and their goal is to improve the lives of individuals with Down syndrome. They provide education, awareness, medical need assistance, and family support to families throughout Michiana and the surrounding areas.

Please take time to check out Ella’s donation website where you can donate with your credit cards, or Kirk and I are happy to accept cash and checks (made out to Michiana Buddy Walk).

We know that there a lot of charities out there asking for your money so please know that if all you can send us are your prayers that we thank you for those as well!

http://www.firstgiving.com/ellagoodwin

And of course, if you’d like to join us for the walk please do!

Here’s the schedule:

Event Schedule
We will walk rain or shine.
10:00 – 11:30 – Register and turn in your donations.
(T-shirt for each walker that raises $50- while supplies last)
10:00 – 11:30 Silent Auction Open
10:00 – 1:30 Vendor Tables Open
10:00 – 1:30 Fun & Activities with ND Athletes
12:00 Walk / Followed by Lunch
Entertainment
10:00 – 10:30 Dads Band
10:30 – 11:30 Leonardo
11:30 Speech / Slide Show
12:30 – 1:30 Leonardo

And here’s the directions to the Stepan Center (on Stepan Drive) on the Notre Dame Campus

Directions:

Go west on Douglas Road ½ block past roundabout turn South on Wilson Drive then west on Stepan Drive.  You can also find it through Google Maps. Or for those with a GPS the coordinates are 41.706270, -86.234349. A map can be found below.

View Larger Map

Just a quick update on Ella … our lives keep passing by and I can’t seem to get on the computer, so please forgive me for not getting this together sooner.

Ella had her eye surgery on August 14th and everything went very well – the doctor saw her the day after and was pleased with how straight her eyes looked. And, while sleeping in arm restraints and having drops & greasy gel put into her eyes made her extremely unhappy at first, she has been a trooper as usual and by the end was even allowing dad to put the medicine in without mom having to sit on her! We have finished all her meds and only have a couple days left of the arm restraints and we’ll be all done.

The procedure was called a bi-lateral medial rectus recession. It involved making an incision on the white part of her eyes – on the sides so there should be no visible scaring. From that point the doctor detached the muscles (nearest her nose) and re-attached them further back on the eye. They used dissolving sutures and she did not have any bandages or patches over her eyes when they were finished.

We have a follow up appointment at the end of September to check the true outcome of the surgery. In the meantime, she’ll continue to wear her current glasses prescription with the potential of outgrowing her far-sightedness (kids often do). However, there is a good chance that as she grows she will move into being near-sighted like dad, so she’ll probably continue needing glasses regardless, but we’ll see.

Thank you to everyone for all the supoprt you always provide to us!