Returning to the Scene of the Surgery
Written by: Kirk
It has been one week since we brought our two year old home. Our little Ella is doing well. We have good nights and bad nights. Last night was one of those a bit worse than others. We finally got her to sleep at about 12:30 and her 7 AM medicine time came way too early for both Ella and her folks.
Tomorrow we head back to Children’s Memorial to have Ella’s drainage tubes out and then learn how to inject the saline into her expanders. We are blessed that one of our friends from our church is a nurse and her husband agreed to take the day off of work (he’s a co-worker of mine at Whirlpool) and she will join us at the doctor’s office to learn how to do the expansion, along with me, to be a standby if I am out of town due to work or if I simply can’t handle it. Bonnie has already decided that she’s not going to be the one to “blow up our daughter’s head” as I have been heard to say.
Ella’s head was shaved in a few places to view he edges of her nevus so once the “surgery hat” comes off we will need to figure out a new hair style. Right now she looks like she has an older sibling that decided to “help” give her a hair cut. I’m guessing Bonnie won’t be a proponent of the Sinead O’Connor look so we may need to be creative with it. We’re not sure if we can wash her hair when we get back tomorrow, but it sure can use a good cleaning.
We put Ella down to bed about an hour ago and I still hear here moving around downstairs in her room through the baby monitor, so please keep her sleep (and her folks‘) in your prayers. Please also keep in your prayers a successful, safe trip and that Ella tolerates the expansion reasonably well and remains her cheerful self!
Tags: Ella, Expander, Friends, Hair, Nevus, Prayer Request
